Sunday, June 16, 2024

New ALS drug giving DFW families hope



The newly permitted drug is considered one of three available on the market to assist deal with sufferers within the U.S.

IRVING, Texas — The FDA permitted a brand new drug to assist deal with sufferers with ALS, and DFW sufferers are desirous to get their palms on it. 

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“My expiration date is coming up sooner than everyone else’s,” Irving’s Andrew Szabo advised WFAA of his analysis. “We’re talking about a death sentence here.”

Szabo was identified with ALS, or Lou Gehrig’s illness, in 2021. The progressive neurodegenerative illness is deadly. Most sufferers solely reside for 2 to 5 years after a analysis.

Federal regulators imagine the brand new drug, Relyvrio, will gradual the illness’s development and extend sufferers’ lives. 

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“If you can give somebody that extra year…the ability to see a child born, a grandchild born, a wedding…you’re giving ALS patients hope when they’re facing death,” Szabo mentioned. “In the past, there was no hope for ALS patients. And they said for the first time, there is actually hope.”

The drug has its critics. There is doubt amongst sure medical circles that Relyvrio’s trial was accomplished too quick and in too small a scope.

But Szabo and his spouse, Melissa, imagine the drug wanted to return on-line as quickly because it did.

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“It’s hard to think about a future with him…that is probably my hardest thing to overcome,” Melissa mentioned.

Andrew advised WFAA, irrespective of how a lot time he has left, he’ll “finish strong.”

He and Melissa are headed on a world journey in just some weeks.

“He’s still amazing,” Melissa mentioned. “Even with ALS.”

The drug is predicted to be accessible to sufferers in just a few weeks.



story by The Texas Tribune Source link

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